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Rank: Advanced Member  Groups: Registered
Joined: 3/29/2013 Posts: 106 Location: Surrey
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Hi, I've been to see the rheumy nurse today and she's now introduced hydroxychloroquine to my medication Of methotrexate, Steriods & frolic acid. I nearly fell over when the pharmacist told me that would be £39  - so glad I pre-paid Louise
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Little Miss Sunshine73 wrote:Hi, I've been to see the rheumy nurse today and she's now introduced hydroxychloroquine to my medication Of methotrexate, Steriods & frolic acid. I nearly fell over when the pharmacist told me that would be £39  - so glad I pre-paid Louise Although you'd think that we'd enjoy the same privilege as epilepsy / diabetes sufferers - free srcips Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 3/29/2013 Posts: 106 Location: Surrey
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Exactly, its not right and I have written to my MP. When they start coming round for votes god help them as it will be the question on the top of my list of what they are doing about prescriptions!!!!!
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2013 Posts: 144 Location: Dumfries
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Hi folks
I live in Scotland and currently our prescriptions are free. I am on metho, hydroxyl, steroids & folic acid too so that has made me think how much it would cost every month. Surely we should be entitled to free prescriptions wherever we live in the UK as we have a chronic condition.
Regards.
Lisa xx
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Rank: Advanced Member  Groups: Registered
Joined: 2/14/2011 Posts: 301 Location: South Hampshire
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My daughter with RA, has gone to study in Scotland at St Andrews - and we were so pleased about the free prescriptions! Although as she's a student I think she'd be entitled to free ones anyway...... I am 'lucky' as I need thyroxine as well - so qualify for the medical exemption. Anne x
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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i too need thyroxine so get meds free at present,both my kids are the same,i used to feel awfull when my parents were alive as they had heart conditions etc and had to pay a fortune even on prepaids,i belong to kilmarnock and now live in suffolk i wish the free prescrition were brought in back then as it really hurt their purses back then,my sister and i helped out taking a turn to pay for the meds,dorothy
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Hi Louise Yes - the pre payment is so worth it! I've just added suplhasalazine so my bag of goodies is huge. I've just got back from India, where everyone has to pay for pretty much everything, so I can't help but feel that we get an incredible deal here in UK - I certainly don't begrudge paying something towards my meds, and I'd be really intrested to know just how much it all costs the NHS. Best wishes - Sylvia Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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I find it hard to understand why some conditions qualify and others don't. My colleague gets hers free due to a thyroid condition yet I have to pay. It's mystifying. Personally I think all prescription drugs should be free but that is a matter of opinion and I don't expect everyone to agree with me. I take around 11 different drugs so would find it really hard to pay for them individually. I agree, thank goodness for the prepaid card. It still costs over one hundred pounds per year but is so much cheaper than paying for each item. XX
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Yes, I have to agree why one condition qualifies for free prescription and yet another one doesn't. My daughter was diagnosed with thyroid problems last year and she was surprised that she now doesn't have to pay for any prescription for any other problem that she might have. I think and my daughter agrees that yes, the drugs for her thyroid problem should be free (like I think ours should), but any other drugs should have to be paid for when necessary.
Karen originally went to see her GP about a skin problem, her thyroid was tested because a thyroid problem can cause skin problems, she found out that she had an under active thyroid and she now has to take one tablet a day. Unlike most of us who have lots of different drugs to take. She felt the benefit in her general well being quickly and she then realised that she must of had the problem for several years. I did google it and it can be serious but in Karen's case thankfully it wasn't.
I view it like this.......she's had the problem for several years, but during that time she has kept a full time job, looked after a home etc etc. She just does not get so tired now but her life went on as normal and never had to be off work sick. Then on the other hand us with RA have terrible pain, can't function, are off work sometimes for months on end, some have to stop working all together and have all the financial worries that comes with not being able to work and yet we have to pay for our drugs......this can't be fair can it?
Paula x
I have the pre payment cards, if you time it right you can get four months drugs out of a three months card. I only buy three cards a year , it is a small saving, but like the advert says.....every little helps.
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Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
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 sorry to say but I get free pills because of under active thyroid. Feel awkward sharing this - I couldn't afford the drugs if I had to pay because I've got food and bills. Not paying is a weight lifted though, Should be free to all ra people I feel. Jane Xxx
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Rank: Advanced Member  Groups: Registered
Joined: 3/29/2013 Posts: 106 Location: Surrey
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Don't feel sorry Jane, if your entitled then your entitled & there are a lot of people feel it's their right to have free things  One of my work colleagues gets free rescriptions for a condition & he too thinks its slightly wrong that he gets everything else free too. Let's hope the rules change to make it fairer in the future
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Goodness me Jane don't feel sorry about it, I wouldn't, none of us should have to pay for our drugs. We don't want the illness, we did nothing to make it happen. If we didn't take the drugs we would end up costing the country loads more in hospital stays, joint replacements and benefits. I don't mind paying for my drugs because I know it is a minimal amount that we pay and some poor souls in some countries have not got the luxury that. I just think that if it is an incurable illness, we should get them free, we really haven't got a choice about if we should take them or not.
I do get confused though about the drugs we get delivered. When I told MTX orally I had to pay for my prescription, but when it is delivered to my door in injection form it is free. The same goes for Enbrel, that is free as well, so how can that be justified?
Paula
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Jane. wrote: sorry to say but I get free pills because of under active thyroid. Feel awkward sharing this - I couldn't afford the drugs if I had to pay because I've got food and bills. Not paying is a weight lifted though, Should be free to all ra people I feel. Jane Xxx I met another one of the criteria for free scrips by reaching my 60th birthday! :) Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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ditto Paul, i always had the pre-payment card as i have a long list of meds. i also reached the criteria for now not paying in April .. can't say that make's me happy though  but there's not much i can do about it. hey ho Suzanne
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